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One in every 50 children has an autism spectrum disorder, according to the Centers for Disease Control. And because it is Autism Awareness Month we are seeing a plethora of wonderful articles – filled with sensitivity, insights, wisdom and first-hand knowledge – written by those who are the true experts on the subject. Here are four great reads on the topic.
Ellen Seidman @LoveThatMax shares her take on autism awareness through the prism of her son Max. In her blog in the Huffington Post, World Autism Awareness Day: The Problem With Labels, she writes why stereotyping her son and other kids with autism prevents others from experiencing their uniqueness as human beings.
“But here's the thing about labels: they whitewash the uniqueness of the child,” she wrote. “When people figure that Max has autism because he looks or acts a certain way, or when people think that kids with autism are like Dustin Hoffman in Rain Man, they presume to know what our children are like -- which does our kids a major disservice. That's where we, their parents, come in.”
All of us can do the following:
“…Help people understand that kids with special needs are distinct individuals with definitive preferences, likes and dislikes. You know, like any kids. Help dismantle the stereotypes that accompany the labels. Help people see the ability in disability.”
To read the whole article, go to: http://www.huffingtonpost.com/ellen-seidman/world-autism-awareness-day_b_3001124.html?ncid=edlinkusaolp00000003De
Dennise Goldberg @SpecialEdAdvice, who writes the Special Education Advisor blog, says in her article, April, a Time for Autism Awareness……a Time to show Compassion, that April may be the only time of year when the entire society discusses autism. Believing that there are many who have yet to be diagnosed, she calls for compassion for all those who struggle with the disorder:
“We’ve all seen other children or adults who struggle with autism-like behavior, but for whatever reason they are or were unable to receive early intervention. We all know the importance of early intervention to assist anyone with special needs; the reality is that not everyone who needs it will be given the opportunity to benefit from it.
“My hope is that as a society, we not only look at all those who have been diagnosed but we do not ignore those who haven’t. Don’t forget about those you might see in your child’s school, in the market, at a sporting event, the mall and the list goes on and on! If you see a child or an adult struggling to navigate in a social situation show some compassion for them. Maybe they are having a bad day or they have yet to be diagnosed with a disability and receive the necessary help they desperately need; we can offer assistance instead of judgment.”
To read the entire article, go to:
In another Huffington Post blog, Saint Judy, Leda Natkin Nelis writes in praise of her mother who has provided her and her autistic son consistent and loving support from day one. She writes that every parent of a child with special needs should have support and an advocate like her mother.
“Raising a child with special needs has been challenging to say the least. Convincing the medical community that my concerns about my son were valid, and then attaining a proper diagnosis, was a gruesome battle. My mother has been right there in the trenches with me from day one. My gorgeous and successful Asperger's son would not be where he is today without Judy's belief and support. From the day he was born, I struggled to understand why this tiny baby was clearly in pain. Family members judged me as a parent and judged my child. Mothers at the playground whispered and pointed at the non-functional displays of behavior. Throughout it all, Judy's belief in me and in my son never swerved. She insisted that together we would find answers, and always asserted that she could see in his eyes that my son was a genius.”
She goes on to urge all mothers of special needs children to not feel ashamed to seek support:
“We all, as vulnerable mothers of special needs children, need an advocate. Your advocate can be a parent, a spouse, a friend, or a charity worker. Do not be afraid to ask for support. Do not feel ashamed.”
To read the entire article, go to:
In his blog, Autism from a Father's Point of View, Stuart Duncan @autismfather presents the facts about the disorder to strip away the fear. He says that while awareness is “mandatory,” the facts and figures can often lead to fear. He urges parents who have received an autism diagnosis for their child to “embrace the fear.”
“What I mean by `embracing the fear’ is that some parents fight against the autism and thus fight against their own child, pushing them to not be themselves, to not be autistic at all and take that fight outward as they try to find someone or something to blame and forcibly share more and more information that they find in an attempt to perpetuate the fear onto others so that they can fear autism as well.”
To read the whole article, go to:
The takeaway for parents is that there is a huge online parent community ready to support and help you, should your child have autism. Take advantage of it!
Posted on April 28, 2013 by Meryl Ain, Ed.D
Dr. Meryl Ain has worked in several large New York school districts as a central office administrator, teacher, and school building administrator. She writes about education and parenting for Huffington Post, several other publications, and on her blog. You can also follow her on Twitter.
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